Effective care coordination is critical to a successful transition of care for youth and young adults with spina bifida. These illustrative guides (infographics) serve to reinforce the value added to having a care-coordination team to support youth and young adults with spina bifida as they transition from pediatric to adult-focused health care while highlighting the unique needs of individuals with spina bifida. It also helps pediatricians and other healthcare professionals in supporting youth and young adults through the healthcare-transition process.
The Attributes of Advanced Primary Care characterize advanced primary care (APC), a practice that shifts the focus of primary care toward quality. The attributes are ways the Shared Principles of Primary Care can be applied and realized in practice.
Implicit bias is the unconscious collection of stereotypes and attitudes that we develop toward certain groups of people, which can affect our patient relationships and care decisions.
You can overcome implicit bias by first discovering your blind spots and then actively working to dismiss stereotypes and attitudes that affect your interactions.
While individual action is helpful, organizations and institutions must also work to eliminate systemic problems.
Spina bifida is the most commonly occurring complex congenital birth defect and has been associated with increasing survival rates. This free webinar series addresses important care guidelines and highlights the critical role of pediatricians, subspecialists and other clinicians in caring for individuals with spina bifida.
Although patients with rare conditions are primarily cared for by sub-specialists, the initial care pediatric patients receive in the medical home helps establish early diagnosis. Early diagnosis can inform prognosis, service planning, and monitoring for associated developmental and medical conditions.
