Learning From Patient Experience

This webinar, co-hosted by the Center for Patient Partnerships, reviews the advent of patient experience as a vital measure of health care quality, and highlights innovations designed to elicit patients’ stories about health and health care with more narrative richness than current validated instruments invite.  Strategies highlighted for rigorously collecting and using qualitative patient experience data include:

  1. A set of validated open-ended questions which can either stand alone or be used in conjunction with patient experience surveys, and 
  2. An internationally-vetted methodology for researching and publicly presenting video-taped patient experience data which is now being implemented in the U.S.

*This webinar is free-of-charge and is supported by Grant Number 1L1CMS-331478-01-00 from the U.S. Department of Health & Human Services, Centers for Medicare & Medicaid Services. The contents provided in this webinar are solely the responsibility of the presenters and do not necessarily represent the official views of HHS or any of its agencies.

Mark Schlesinger, Ph.D

Professor of Healthy Policy, Fellow, Institution for Social and Policy Studies at Yale University
Mark Schlesinger, Ph.D. is a wayward economist often mistaken for a political scientist or social  psychologist.  For the past two decades, he has studied patient experience and patients’ responses to problematic medical encounters; over the past five years complementing that work with research into ways of enhancing the scope, clarity, and influence of patient voice (including collaboration in the DIPEx USA network).  Dr. Schlesinger’s other  research interests include the determinants of public opinion about health and social policy, the influence of bounded rationality on medical consumers,  the impact of economic insecurity on political attitudes, and the role of nonprofit organizations in health care systems. read more

Rachel Grob, M.A., Ph.D

Director of National Initiatives, Center for Patient Partnerships and Senior Scientist at the Department of Family Medicine, University of Wisconsin-Madison
Rachel Grob, M.A., Ph.D, is Director of National Initiatives, and faculty at the Center for Patient Partnerships and Senior Scientist at the Department of Family Medicine, University of Wisconsin-Madison. She is a sociologist whose career, both inside and outside academia, has been devoted to involving patients in the discourse, policy processes and institutional arrangements that impact their health care. She has conducted research about patients’ experiences on a wide array of topics, and is qualitative research lead for the USA’s health experiences research initiative using the internationally adopted “Database of Individual Patient Experience” or “DIPEx” methodology. Rachel’s work has been supported by numerous funders including Robert Wood Johnson, Ford Foundation, and AHRQ. read more
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